A Selection of Patients’ Spontaneous Comments about their Participation in the Study.
A Selection of Patients’ Spontaneous Comments about their Participation in the Study.
| Patient | Comment |
|---|---|
| 1 | I was hesitant at first, but once I got into it I really have enjoyed it. It has been great to put things into words for myself and to know that my family will have this. But also, it means a lot that I might be able to help people know what’s important. You never know when something like this might happen and I’d like them to know that there’s no time to waste not living like you really want to live. |
| 2 | Thank you so much for the wonderful experience of seeing more clearly how God has blessed me. You have put the music to my story. My spiritual legacy … is bringing out such beautiful comments from family and friends. I feel myself that people like it so much because they know it is real … I think everyone regardless of health situation should ponder those questions. They make it very clear how we are continually blessed and aided by God. |
| 3 | Thank you for all your help with my Spiritual Legacy Journal. I really enjoyed the process as I had to speak and read the words of my faith journey. I came home from our meeting last week and got out my “Funeral File.” I have been compiling additional thoughts as I plan to give a copy of this document to my children and siblings. It will be nice to have so much about me in one location so when those difficult decisions need to be made, I can have some suggestions ready for them. |
| 4 | Thank you for your kind and sensitive listening. The most interesting and useful question for me was about my greatest achievement. It gives me a new perspective on the importance of paying attention to what is going on in my life, and responding to it with compassion and courage. |
| 5 | Honestly, I think being here and speaking about the change in me [since diagnosis] is the best thing I’ve done [in my life] so far … I felt the peacefulness that [talking about] it has brought into my life. So probably if someone reads or listens to what I’m saying, it might ring a bell somewhere. It might be a wake-up call for others. |